My wife's niece has Rett Syndrome. It's rare, and almost exclusively affects girls. This disease will most likely take her life. Since the disease is rare, it is also not very well known, nor well funded. I just wanted to get the word out as much as possible in my own tiny sphere of influence. Please take a minute and check out the links. Thanks.
www.reverserett.org
Rett Syndrome - Rare Disease
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I am so sorry. Is Emmaline your niece?
Our very best wishes for Emmaline and her family, from our family. Tough stuff.
Donation sent.
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