Rett Syndrome - Rare Disease

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Apr 20, 2017
Utah, USA
My wife's niece has Rett Syndrome. It's rare, and almost exclusively affects girls. This disease will most likely take her life. Since the disease is rare, it is also not very well known, nor well funded. I just wanted to get the word out as much as possible in my own tiny sphere of influence. Please take a minute and check out the links. Thanks.
Originally Posted By: Astro14
I am so sorry. Is Emmaline your niece?
My wife's niece. Thanks.
Originally Posted By: carviewsonic
Our very best wishes for Emmaline and her family, from our family. Tough stuff.
Thank you! That means a lot!
Originally Posted By: Astro14
Donation sent.
Astro14, you are so kind. Thank you so much for your generosity!
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