My aging (in place) parents

My grandparents on my dad's side had similar aspirations of dying at home on their 100 acre farm. Grandpa was the "Terminator", survived breaking his neck in his 80's falling off the roof (was up with an axe trying to remove an ice dam), then later a punctured lung compounded by pneumonia after falling down the concrete basement stairs with his neck brace on, which led to 5x back-to-back heart attacks. Still ended up back home for several years after that.

Both were suffering mental decline, though grandpa's true condition was muddied by his alcoholism (hence being on the roof). I think he was in better shape than she was, she'd had several strokes in her early 80's and that seemed to precipitate a moderate rate of mental decline (dementia).

Despite considerable home care, things were not great and my grandfather got harder and harder to deal with (he was angry and uncomfortable due to the injuries) and eventually ended up having to be taken from the home after getting abusive. Once he realized he wasn't going home he went to sleep and didn't wake up.

The whole situation was an absolute nightmare for my dad and his brother to deal with, like your situation. It drains you.

Grandma was checked into a home once grandpa was gone, she was forgetting who people were and was adamant that she was going home to the farm "any time now". She lived there for several years, passed away at 93.

My parents are now in their 70's and, like yours, have considerable financial resources. My mom is quite sedentary, while my dad, like his dad, is pretty hyper, so stays active, though we are concerned and watching for any signs of mental decline (because of what happened with his parents), since he's my mom's primary caregiver, manages all the finances, does the shopping...etc. Mom, even with two new knees, still won't put in the effort to exercise like she's supposed to, and we are concerned this is going to lead to a situation where she can't, not just won't.

It's not easy, and I remember my grandparent's situation being a nightmare, and yours sounds considerably worse, so I can't even begin to imagine the stress that put on you guys.

My good friend, when faced with considerable physical pain, also in his 80's, arranged for assisted and "peaced-out" on his own terms. I still struggle with that situation, as he was otherwise in excellent health and sharp as a tack, but the decision was ultimately his to make. My dad's brother developed terminal cancer and also decided to exit via assisted, that decision was far easier to handle.
 
Pablo, that's not easy, I'm sorry.

I know that I am a terrible care-giver. I hate the task and I am not good at it. When my father was declining, my wife and I spend our free time dealing with him. It was unreal as I discovered that I could not work fast enough to undo the disaster he created in real-time.
 
I'm in a similar situation, although not as bad (yet).

Thankfully my mom -- who's 8 years the junior and in better shape -- is all about assisted living. She thinks it would be great.

My dad refuses thus far and we're all pretty sure he'll only go once wheelchair-bound and given NO choice.

The most frustrating thing for me is that money is no object. They could afford nice assisted living for the rest of their days. Sooooo many people would kill for that luxury, but my dad won't spend the $.

Theoretically it makes my inheritance larger but I couldn't care less -- they worked hard for their money and should use it for themselves. Frustrating!!!
 
The story goes, phone rang (junk call as usual)
I was going to say just white list a few numbers that they need but now that doesn't matter. To anyone interested, you can select only certain phone numbers to ring into the house while blocking everything else.

Listen only to this, if nothing else: Don't try to age out in a house and property. It's not just you in that decision.
Great advice and it's amazing they did so well up to this age together. You got them just in time. Hoping to see them gain some weight and awareness.
 
Pablo, that's not easy, I'm sorry.

I know that I am a terrible care-giver. I hate the task and I am not good at it. When my father was declining, my wife and I spend our free time dealing with him. It was unreal as I discovered that I could not work fast enough to undo the disaster he created in real-time.
Ditto. We just show u and do the best we can.
 
Dealing with this same thing right now with my mom,she's 75 and failing health. She's already fallen a few times ,1 is too many.She hasn't been right since the 1 fall slightly fractured her back. Now she fell again at 2am 2 weeks ago. Got her to hospital and they didn't find a stroke etc ,no breaks luckily .But way too many meds that she is on are not helping.My sis and i are doing everything we can to try and get her better ,but it seems the medical world just doesn't care anymore. She's been in a rehab for a week and half i think now and early this morning she fell in the bathroom and they found her laying in there. Great just great. The place was doing next to nothing for her either. So back to ER today after my sis about tore the place down. So now she's staying overnight in hospital so they can find another rehab to get her into ,because she's not going back to the 1 she was in . No wonder my mental and physical health (im 50) has been going down hill the last 12 years ,mainly last 5yr since she broke he back in the fall. Raising parents is not easy at all .
 
Feel for you. My parents were determined to age in place and die in their own bed. Made it to late 70s but taking care of a rural property was finally too much for both then they had to move into town and bought a small ranch that wasn't really suitable, steps, basement, etc. It was a constant struggle, dad finally fell and broke a hip and got sepsis and died 2/15, mom was determined to stay in that house. In 2018 we moved her to assisted living after some falls and other emergencies, she died of Covid 12/20. Their last years were not pleasant, they resented HAVING to move to a smaller house instead of being proactive. Lessons learned. Some age gracefully, some not so well.
 
I don't have it in me today to type up my experience with my folks. It is 13 months to the day since dad passed. Thursday will be 1 year since my mom passed.

I was their 24/7/365 caregiver for years, in their home. I knew they wanted to live in their home to the end. They certainly never demanded that, and would have gone to a nursing home if my oldest sister (a narcissistic social worker. Ironic, I know) had her way. I made the choice to take care of them, and will never regret it.

I'll just say the caregiver role is tough, and those who haven't done it will never understand.
 
The biggest mistake I made, out of ignorance, was to have their DNR papers in place. There was a lot of suffering that never should have happened.

There comes a point where I had to take over the decision making, and learn what I needed to learn. It was not fun, but once your ducks are in a row, it becomes doable.
 
Listen only to this, if nothing else: Don't try to age out in a house and property. It's not just you in that decision.
I couldn't agree more. I spent a year and a half trying to keep my mother alive in her home and hospitals two hundred miles from me when I had my own very serious health issues to deal with. Somehow that reality just wasn't on her radar. By the time I finally got into cancer treatment, Covid was starting and facilities and treatment were limited, and things went downhill from there. Then I still had to deal with the estate.

Am I bitter? **** right I am.
 
The biggest mistake I made, out of ignorance, was to have their DNR papers in place. There was a lot of suffering that never should have happened.

There comes a point where I had to take over the decision making, and learn what I needed to learn. It was not fun, but once your ducks are in a row, it becomes doable.


I have stated this on here a number of times…

IT IS EXTREMELY IMPORTANT …..

Know what their CODE status is… And talk with them about what they want while they are still alert and oriented times 4…. Person, place, time and circumstances…

Get a Medical POA for your parents…. But be ready to be able to make and handle those decisions that you will have to make.


A Living Will is NOT a DNR order…

And DNR does not MEAN DO NOT TREAT..

Remember that… Certain circumstances and physical conditions can be treated and should be treated.
 
My wife's mother about 86 or 88 lives in Tuscon and we live in Delaware. Her mother does not like cold and snow so she stays in Tuscon. She visits her mom twice a year. Time will tell
 
Wife and I took care of my mom for 26 years starting with her large two story home then to a condo then a nursing home when she fell and didn`t know where she was. My brothers helped when we asked and also my son and his wife. It was tough watching the decline. The hardest part was when Dad was dying and I saw him cry for the firsst time in my life worrying who was going to take care of mom. I said we would and did.
 
Similar situation here @Pablo

My father passed in 2016, dementia that came in phases and was mental torture. It was a long slow process over 10 years.

Mom is doing as well as she can at 86 and I visit weekly for whatever needs to be done. My sympathies.
 
Listen only to this, if nothing else: Don't try to age out in a house and property. It's not just you in that decision.
I hear you. Dad died suddenly in 1999, and Mom had advanced COPD and was on bottled O2 from 2002 until 2007. So, so frail, she weighed 78 lbs. when she passed. Mom still had her mind though, and was VEHEMENT that I don't move her out of her home, nor did she want any "strangers" from home health coming around.

I honored her wishes, but it was a strain. I lived 30 miles away, had three small kids, and worked 12hr rotating shifts. It stretched me to say the least.
 
I'm 79, have out lived two wives and a long term girlfriend. Told my son in law each of my decades have been better than the former and he said, "Yeah, but your eighties won't be." During the Covid year I lost a dog and my girlfriend of eight years. In her case she had some kind of unnamed auto immune disorder, kidneys shut down, the kidney specialist got them started again which gave her lymphoma. The dog started hiding in the basement, I didn't want to him to die down there so I took him in. Couldn't stay with him because of Covid restrictions but he got a better, shorter, less painful deal. My second dead wife worked for a pulmonologist, she was hospitalized for months. Ran into her boss at the nurses station about a month before she died. He said "There's not a person working here who would want to go out the way these patients do. Their kids try to keep 'em going all too long. Don't worry, Carl, we know how to take care of our own." She died at her daughters' not at the hospital, but all those dying stories make me feel my next decade may not be my best. Maybe I'll get a ladder, apple tree and squirrel or just go down to the basement and lie on the concrete. My dog knew what was best for him.
 
Back
Top