Sleep Clinic and Sleep Apnea - Your experiences

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Ok so my dad has Sleep Apnea (The snoring kind) and because of that and his new CPAP machine my doctor wants me to go back and get re-tested for the non-snoring kind where your brain slows down your breathing to the point you breathe extremely shallow or stop breathing.

I have spent 2 nights at one of these already and they said although my O2 level dropped at night it wasn't below their critical threshold.

Since my Migraines seem to be flaring up again and I have had some dizzy spells here/there at home he figures this might be a good time to do it again just to be sure.

So I get to spend the night there tomorrow.

I just wanted to know if anyone has any tips to make this test show them I have it for sure (convinced I have it like dad).

Also what is it like to sleep with one of those CPAP machines? Anyone have one? Do you get used to it?

TIA,

Steve
 
Please let me know how it goes. I tend to get headaches associated with my sleep, they are particularly bad when I wake up. I think I need a study done too.
 
I need to get tested for this as well. I don't snore either and am not overweight like many people with the snoring kind of sleep apnea, but I wake up what seems like a hundred times a night and fall back to sleep. I'm constantly tired, have trouble getting up in the morning, wake up with headaches and get frequent migraines in the afternoons. After reading up a bit on sleep apnea it looks like I have most of the possible symptoms. Let me know how it goes. I'll hopefully get an appointment with my doctor soon to see how i can go about getting tested for it.
 
I have severe apnea. Testing showed I stopped breathing 70 times an hour. For up to one and a half minutes.

Yes, you do get used to it. Although the first night found the mask at the foot of my bed.

There isn't anyway to "cheat" AFAIK, as they monitor you while you sleep.
 
Originally Posted By: StevieC
Ok so my dad has Sleep Apnea (The snoring kind) and because of that and his new CPAP machine my doctor wants me to go back and get re-tested for the non-snoring kind where your brain slows down your breathing to the point you breathe extremely shallow or stop breathing.

I have spent 2 nights at one of these already and they said although my O2 level dropped at night it wasn't below their critical threshold.

Since my Migraines seem to be flaring up again and I have had some dizzy spells here/there at home he figures this might be a good time to do it again just to be sure.

So I get to spend the night there tomorrow.

I just wanted to know if anyone has any tips to make this test show them I have it for sure (convinced I have it like dad).

Also what is it like to sleep with one of those CPAP machines? Anyone have one? Do you get used to it?

TIA,

Steve


I've had one for the past 6 months, give or take. It's a love/hate relationship. If I've been good about keeping it clean, it's really no problem. I had become accustomed to sleeping on my stomach so my wife wouldn't complain about my snoring. I can't really do that anymore.

When I first got the machine, I found it hard to sleep over 4 hours with it. The best advice is for your dad to simply keep at it. Eventually you get accustomed to the mask and will sleep all night.

I actually woke up more groggy at first. I think I was finally sleeping deeply. Seemed odd, but I think it's working.

It's important to keep the mask clean. I was told to use baby shampoo so it won't damage any of the components.

If you go to the sleep clinic for a sleep study, TAKE YOUR OWN PILLOW.

I could never sleep right with their pillows. I had to sleep there twice and regret not taking my own pillows. The clinic I visited had the sleep number bed, and that's what I use at home, so that was relatively the same.

My machine has a ramp-up function, so it doesn't start at the full pressure. After 15-20 minutes, by then hopefully I'm asleep, it ramps up to the prescription pressure.

Also, my machine has an SD card with the prescription and the data collected by the machine. I take that card when I visit the doctor.
 
I was diagnosed with mild obstructive sleep apnea 2 years ago and was prescribed a CPAP. Took about a week sleeping with it to really get used to it and now I won't EVER sleep without it. I go right to sleep, get in a solid 8 hours and wake up refreshed. LOVE IT. Better sleep than I had for the previous 10 years of my life.
 
I will keep all members posted... My dad has the one where he stops breathing because of the skin blocking his airway and then gasping for air.

My mom has seen me fall asleep on the couch and go white as a ghost and be quiet and not feel air coming in/out of my nose/mouth and then me gasp for air. (I don't remember any of this of course)

Apparently this is the harder one to diagnose because it involves more indepth monitoring.

Because I'm having more frequent headaches, I'm tired all the time and my BP is elevated from the "LOW" level it usually is at my doctor is thinking this now is a good time to get re-studied.

I will snap some photos of me wired up with my I-Phone if I can so you can see what its like...

They told me to bring my own pillow, which is good because I can't sleep with "other" pillows. Even when I stay in a hotel I bring my own.
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Several years ago I started falling asleep at work, and had zero energy. I had gained quite a bit of weight since getting married, and I read an article by a sleep doctor that being overweight was a major cause of sleep problems/apnea. So I lost some weight and I started sleeping well again.

I just did a search and found this on the first site...

"Losing weight is one of the best home remedies for sleep apnea. Most people who have the condition are overweight and losing weight has been shown to help sleep apnea dramatically. This is because fat deposits in the mouth of an obese person can limit breathing and breathing is further limited when the person is laying down."

Stevie, I'm not saying you're fat, just that it worked for me, that's all :)
 
I've been using one for four years to help with mild apnea. As said, I don't know of any way to cheat the test.

The mask/hose issue is a major pain, but mostly for your sleeping partner, as after a while the wearer gets used to managing the gear. I know many people who use them, and no one who would EVER give them up.

It can take a while to find the right mask. Actually, this is like oil - you never really find the 'right' one....
 
Originally Posted By: hate2work

Stevie, I'm not saying you're fat, just that it worked for me, that's all :)



Oh no you didn't...
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I tried loosing 30lbs as they suggested and it never helped my situation not that I thought it would because mine isn't an obstruction type sleep apnea it's a brain isn't working properly and has bad firmware.
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Maybe my brain is made by Toyota and stalling out and needs a recall?!?
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Originally Posted By: TooManyWheels
The mask/hose issue is a major pain, but mostly for your sleeping partner, as after a while the wearer gets used to managing the gear. I know many people who use them, and no one who would EVER give them up.


I disagree. In my case, my snoring would keep my dear wife from getting any rest, even if she went to the basement guest room - I snored so loud I would keep her up even there! Once I got my CPAP and used it for a couple days to get acclimated to it, both of us started sleeping soundly. If your partner cares about your well being, they'll deal with the hose & mask for a bit until it gets like second nature to don it before dozing off.

Apparently they also have problems keeping people using the CPAPs regularly. I always got praised when I went in for follow-up visits because I had 99.5 - 100% compliance (I would usually miss a night of use every few months due to business travel). Apparently some folks hate them and will never wear it, which is sad as it can drastically improve the quality of your sleep - which is IMO one of the cornerstones of quality of life!

StevieC, the sleep study is one of the worst night's sleep you'll ever have but completely worth it. If they identify that you have some manner of apnea events, you'll go back for a second one to titrate the CPAP pressure to determine the minimum level what keeps you sleeping soundly.
 
Thanks for that info... I doubt I won't sleep soundly... I can fall asleep on an airplane sitting next to a noisy engine. Nothing bugs me at all.

I have also had to wear a haulter monitor for 2 days when they were checking out my heart for Mitral-Valve Prolapse when I first started complaining of migraines, headaches, energy loss, vision problems, dizziness, and palpitations that started coming really out of nowhere... about 2 years ago. (Don't have this) but it had a ton of electrodes all over my chest and connected to a box I wore on my side. It also had a Blood Pressure cuff that would inflate every hour.

It was annoying in the day but I slept just fine with it even though I had to sleep on my side.
 
Originally Posted By: StevieC
I have also had to wear a haulter monitor for 2 days when they were checking out my heart for Mitral-Valve Prolapse when I first started complaining of migraines, headaches, energy loss, vision problems, dizziness, and palpitations that started coming really out of nowhere... about 2 years ago. (Don't have this) but it had a ton of electrodes all over my chest and connected to a box I wore on my side. It also had a Blood Pressure cuff that would inflate every hour.


Hi Steve,

Considering all your health issues, I am surprised at your posting stamina.

Cheers,
-J
 
Sorry in advance for the length here.

Quote:
I disagree. In my case, my snoring would keep my dear wife from getting any rest, even if she went to the basement guest room - I snored so loud I would keep her up even there! Once I got my CPAP and used it for a couple days to get acclimated to it, both of us started sleeping soundly. If your partner cares about your well being, they'll deal with the hose & mask for a bit until it gets like second nature to don it before dozing off.


I agree with everything you said. I think he was more or less talking about sleeping next to Darth Vader. It's a little tough to cuddle up to an extra from the movie COMA.
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I had a big snoring problem. Joyce didn't mind it at all. But it was serious. Camping ..guys sharing hotel rooms when the various couples got married ..extreme.

When it developed into apnea, Joyce couldn't sleep. She'd hear me stop breathing, ..gag..gasp .. I'd wake up seeing stars when she'd whack me in the face as she immediately passed out. I'd be looking around wondering what happened.

Started having a serious problem driving home from work. Finally got a sleep test that was done at home. They tape the monitoring leads to you ..and leave. They pick up the recorder the next day. Fine. Got the machine...etc..etc. I couldn't hang with the nose cone.

A bit later (months or maybe a year), I got another sleep test. This one was about 2 blocks away. Nice comfortable setting. They did it over 3 days. I forget the sequence, but they would have you just lay down for 20 minutes 3 times. They wanted to know if you fell asleep. Then they monitored you overnight. Then the last night was monitored with a CPAP machine.

Now here's something I think was one of those wrong turns that cast some things in stone.

When I was on the machine they used a nose cone. My nose had been broken when I was a teenager and my septum was severely deviated. When being referred to as a "mouth breather" ..it was literal. I had to really control my nasal breathing or it was LOUD.

Anyway, I kept saying that I couldn't breath with the mask ..and they kept turning up the pressure. After about half a dozen cycles I blurted out "why don't they have a full face mask?". The Russian physician ..who was playing sleep tech while he passed our intense AMA filter, says, "Oh, you want a full face mask"?

So, I get a full face mask ..and we're now at the higher pressure. I pulled the mask off a couple of times in my sleep, but the guy said I was doing very well.

So, full face and 18cm3 (I think it's some metric equivalent to W.C.) of pressure.

There's a side effect of higher pressures with CPAP. You lose your ability to breath on your own. When I was in the ER with my back, when the narcotics would come in (for some reason drugs "pulse" or wave with me) the monitor would start beeping since I would instantly have my O2 drop below the alarm level.

Essentially, you're married to that machine for life. I haven't researched it, but I don't know if there's a reconditioning process to re-pattern yourself to normal. For those who have relatively light settings, if all else fails ..or you need to sleep in a car, all you typically have to do is sleep sitting somewhat upright, and you're fine. I, otoh, will go to some state of hypoxia.

The higher the rating, the more dependent you'll be on it. You're vulnerable to power outages ..heck, if your machine takes a hike, you're going to be tap dancing to get it replaced in short order. They want sleep studies done every 2-3 years. They'll pay to rent the machine for 90days (the rental is about as much as the machine costs ..which the insurance company also charges after the rental). I think my current machine was $2500+. It's much more full featured than my last one.

Here's the blower unit out of my original "turtle". I got it to last a while longer with Pennzoil Long Life 15w40, iirc. Our was it MC 5w-20?? The lube went on the motor ..not the internals of the blower.

I did manage to find the company who made the motor. I inquired about getting another one. I got an email back asking if I was OEM or aftermarket (
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). When I said "aftermarket" (
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) the guy emailed back, "Well, you're out of luck since we only sell to OEM" (
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).

Just like our engines, air filtration is critical. Not so much for your lungs, but the impeller blades.

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Hey Stevie,I found out a few months ago that I have severe sleep apnea.I would wake up at night and be choking.Not fun.I have a CPAP that starts out at a set pressure and adjusts itself during the night to fit what is needed.If you have apnea,make sure that you get a CPAP with a humidifier.It takes some time to get used to,if the mask you get does not work or you have problems with it,make SURE that you try to get that taken care of ASAP,if the mask does not fit good etc.,you cant get the full use of what it is supposed to do.I have to take the mask and hose and water tank apart once a week and wash them in an anti-bacterial dish soap,it helps to kill any germs that may be in the parts.Also,make SURE that you use DISTILLED water in the humidifier,if you dont,things can grow in the water tank.If you have any questions,private message me and I will try to answer them.
 
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Originally Posted By: Gary Allan
So, full face and 18cm3 (I think it's some metric equivalent to W.C.) of pressure.


It's centimeters of water column. My OSA is fairly mild and I only need 8cm WC.
 
My physician's group opened their own sleep clinic since they were outsourcing so many (
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) so I got another test since it was covered (
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) horribly uncomfortable and they anticipated you being asleep by 11+/- while I was a 2am'r. Then they were waking you up to be out the door by 5am.
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Anyway, the sleep doctor's nurse called and said "11cm3" ..I said "Absolutely not. I require 18". She then simply sent me home with a recording CPAP machine that automatically progressed until there were no more than 1 incidents per hour. She called back, "You were right. 17".

Now why in the heck don't they just send you home with one of those machines every 1-2 years? Heck of a lot cheaper and more convenient.
 
Oh Stevie, what a life when one doesn't sleep well enough to fully function the rest of the time. I have a friend that cannot bring himself to become accustomed to his CPAP, which keeps him from getting the great benefits it can provide him. I have no trouble using mine.
One thing you could possibly face would be the need to go from the CPAP to a Bi-PAP. My problems were severe enough to call for that change. I really hope you won't need to. If you have to go to the Bi-PAP, as I did, it will give the set pressure for inhaling and a drop to near room pressure as you exhale. It works great and times itself entirely to YOUR breathing.
There are other sleep disorders that could show up in your polysomnogram, but hopefully that won't be the case. I have other disorders that the CPAP and Bi-PAP cannot solve that require medications. In short, the machine will keep you breathing IF you sleep, but it cannot MAKE you sleep. That's where other remedies come into play. Any way, I hope you won't need them. As for the mask. There are several of these and the right one will work for you. A wrong one can disturb you rather than help. The sleep clinic should determine which one is for you.
We will all like to know how this comes out for you, and wish you the best..
 
cpap is not addressing the cause but helping you breathe.
Snoring indicates some sort of blockage in the throat.
after gaining a few lbs, I snore if I sleep on my back.
what worked for me is:
1. sleeping on my side
2. a high one diameter body pillowish firm pillow (like of one of em from japan)
3. keeping my head higher than the natural stance when I am on my side.
4. bite guard - this one is KEY, I found that when I bite my lower jaw slides back and than causes stress and snoring. keeping my jaw a bit open helps a LOT. so I take of those sports bite guard and cut out a section the size of chewing gum, so if fits fine on my molars and actually is the same size as my molars. I cut the edges round so it does not cause discomfort.
5. Temp: I found that keeping room temp warm I snore less, also wearing long sleeve.

TAKE snoring seriously, it is more than a loud sounding pain in the butt. it may cause palpitation, heart muscle thickening, high blood pressure....

A CT scan should reveal what is causing the snoring.

your dentist can make you a custom apnea bit guard, which moves your jaw forward and will be SO MUCH cheaper than a scammy sleep clinic.
 
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